Chronic Fatigue Syndrome/Fibromyalgia Resources

Here are some of my favorite sources of Chronic Fatigue and Fibromyalgia information and support. This is by no means an all-inclusive list and I will update this post regularly as I find more sites.

Some of the original links weren’t working but they should be fixed now. Sorry about that. 


I Have WHAT?

Chronic Fatigue Syndrome: CDC Definition, Mayo Clinic Definition

Fibromyalgia: CDC Definition, Mayo Clinic Definition

 

Explaining your illness to family and friends:

The ever-popular Spoon Theory – Takes the abstract concept of limited energy and makes it tangible in a way that many people can understand.

How to Understand CFS Crashes in 5 minutes or less – If spoons aren’t your thing, try this post from the SweetBriar Sisters who use beans instead of spoons and do a superb job of explaining energy borrowing and how crashes happen.

 

Support sites (Most of these are run by patients themselves, not medical professionals):

ChronicBabe – In the words of it’s creator Jenni, ChronicBabe’s goal is to help young (and young at heart) women with chronic illnesses “have an amazing life in spite of illness.” This site has articles, a forum, and AWAP (as well as possible) Wednesday videos answering various questions. Be sure to check out the blog archives for great articles!

FM/CFS/ME Resources – “FM/CFS/ME RESOURCES was created in 1997 to provide research, support and education for people affected by FM and CFS/ME. You’ll also find resources to aid in finding doctors, disability attorneys and support groups worldwide.”

SolveCFS.org (Formerly The CFIDS Association of America) – Good resources, supports research.

But you don’t look sick.com  – Has articles, interviews, product reviews, and much more.

Rest Ministries – A Christian faith-based support group for the chronically ill. They have some articles about living with chronic illness that are useful regardless of religion.

 

Suicide Prevention and Support:

People with chronic illness have a higher risk of suicide than the general population. If you or someone you know is considering suicide, please seek help before it is too late. There is only one YOU in the world, and you matter.

National Suicide Prevention Lifeline – 24 hour, toll-free hotline that is completely confidential

Suicide Hotlines by State – exactly what it sounds like.

ChronicBabe did sort of a master post with a ton more resources for both those considering suicide and those who have lost someone to suicide. Instead of replicating her post here, I’ll just link you to it. AWAP Wednesday: The Suicide Edition 

 

Tracking Your Illness:

MyFitnessPal  – I’ve had to keep a food journal many times and this is the easiest way I’ve found to do it. MyFitnessPal lets me log not only what food I’ve eaten, but how much. They have a large database of foods and nutritional information which makes tracking things like sugar intake, iron, and calories easy.

 

Support for Spouses and Partners of the Chronically Ill:

Well Spouse Association – A support group for the spouses of ill persons.

 

Service Dog Organizations:

Canine Partners for Life – Provide Service and Assistance dogs for a wide range of illnesses.


Are there any I missed? If so, please let me know so I can add them. What are your favorite resources for dealing with chronic illness?

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